Madi’s Story

Hi! My name is Madison Wolff, and I’m 22 years old. I recently graduated from Arizona State University’s Walter Cronkite School of Journalism and Mass Communication, where I studied Journalism and Mass Communications. I’m passionate about storytelling and creativity, and I plan to pursue a career in public relations, hospitality or social media. When I’m not working on new ideas, I love spending time with friends, traveling, watching movies and playing games.

When I was about 10 months old, my parents noticed I wasn’t able to crawl or bear weight on my legs. After many tests, I was diagnosed with Spinal Muscular Atrophy (SMA) Type 2 just before my second birthday. SMA is a genetic neuromuscular disease that weakens muscles by preventing nerve cells from sending proper signals.

Because of SMA, I use a power wheelchair for mobility and face some health challenges, including respiratory issues that make me more prone to illness. Over the years, I’ve had multiple hospitalizations and back surgeries, but I’m currently on a treatment that helps prevent further progression of the disease. While SMA affects my daily life, it doesn’t define me—it’s simply a part of my story.

There are many expenses that come with living with SMA, such as an accessible van, lift systems, and home modifications, that insurance doesn’t always cover. That’s why events like the Swing Away SMA Golf Tournament mean so much to me and my family.

I look forward to this tournament every year—it’s one of my favorite days! I’m truly humbled by all the love, support, and encouragement from everyone involved. Thank you from the bottom of my heart for helping make a difference. We can’t wait to see you at this year’s event! 💜